James I am Jim and was diagnosed as a Coeliac in 2004 at age 61. Previously, our youngest daughter was diagnosed and as a family, we had an awareness that other family members were also coeliacs. Those people were my wife’s uncle and cousin so that was not my...
Shirley As well as having pain in the gut as stated in the survey, I was also using my iron stores. I was on 6 and normal is 350. When I had my gastroscopy and colonoscopy, I also had a 3-hour Iron infusion.
Larissa I had been suffering from low iron for 16 years and visited two doctors at that time no cause was ever mentioned. After moving down the south coast and donating blood and told my iron was low. And after visiting a new doctor, testing...
Angela In 1991 I started feeling exhausted, I had headaches and had brain fog. I went back and forth to my GP who told me: ‘I should rest if I feel tired’. My GP eventually sent me to hospital to see a specialist. After going to hospital regularly for 2...
Rachael I started with chronic hives when I was 18. I was getting recurrent thrush infections from age 21. By 23 I was having trouble losing weight despite exercising 5-6 days per week. At 24 I started getting inflammatory/hormonal symptoms like...
Senja In a nutshell, I wasn’t concerned about any gastro-intestinal issues (although in hindsight I was experiencing some) but got concerned about my consistently high heart rate at the gym, and how it sometimes took a long time to settle afterwards. GP ordered...
Carol Sudden, unexplained weight loss. Severe anaemia that 12 months of iron tablets did nothing to correct. Osteoporosis – a bone density scan revealed that at 52 I had the bones of a 90-year-old with no improvement shown in a second scan taken 12 months...
Sue I was having reflux symptoms which I had had since a child. During my adult life, with the reflux becoming progressively worse, it was suggested to me by my doctor that I have an endoscopy to make sure there wasn’t damage or Barrett’s Disease from...
Brenda I was a regular blood donor for years. In November 2012, I hurt my shoulder at work (which eventually developed into a frozen shoulder). I donated blood in December without any issue. When I went to give blood in March my ferritin levels were very low, and I...
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