Did You Know? The Hidden Truth About Coeliac Disease
Coeliac Awareness Week 2025 (March 13–20)
Did You Know? The Hidden Truth About Coeliac Disease
Coeliac disease affects thousands of Australians—yet over 80% remain undiagnosed. This autoimmune condition, triggered by gluten, damages the small intestine and can lead to serious health complications if left untreated. Despite being one of the most common autoimmune disorders, coeliac disease remains widely misunderstood.
This Coeliac Awareness Week, we’re shining a light on the facts, the latest research, and the importance of early diagnosis.
What is Coeliac Disease?
Coeliac disease is an autoimmune condition where the ingestion of gluten—a protein found in wheat, barley, and rye—triggers an immune response that damages the small intestine. This damage reduces the body’s ability to absorb essential nutrients, leading to long-term health problems if untreated.
Unlike gluten sensitivity, which may cause discomfort, coeliac disease can cause permanent damage to the digestive system and increase the risk of other serious conditions, including osteoporosis, infertility, and certain cancers.
Common Symptoms of Coeliac Disease
Coeliac disease presents differently in each person, making diagnosis challenging. Some individuals experience classic digestive symptoms, while others have neurological, skin, or even fertility issues. Some experience no obvious symptoms at all but still suffer internal damage.
Did You Know?
Groundbreaking Research is Transforming Coeliac Disease Diagnosis & Treatment
Coeliac Australia is funding and supporting pioneering research projects that aim to revolutionise the way coeliac disease is diagnosed and managed.
A Simple Blood Test Could Replace Biopsies
Current diagnosis requires an invasive small intestine biopsy, but researchers are developing a non-invasive blood test that could revolutionise early detection. This advancement could mean faster, easier, and more accessible diagnosis for thousands of Australians.
Children’s Teeth May Hold the Key to Early Diagnosis
Researchers are investigating whether dental enamel defects could be used as a new screening tool for children. This could allow doctors to detect coeliac disease before serious intestinal damage occurs.
The Hidden Enemy in Your Spoon: Are ‘Gluten-Free’ Foods Truly Safe?
Many grains labeled as “gluten-free” may contain gluten mimics—proteins that still trigger immune responses in people with coeliac disease. Scientists are working to identify and eliminate these hidden dangers to make gluten-free eating safer.
Could a Gut Parasite Help Treat Coeliac Disease?
Studies are exploring whether hookworms—a natural gut parasite—could help coeliac patients tolerate gluten by regulating immune responses. This research could lead to future treatments beyond the gluten-free diet.
Coeliac Disease and the Spleen: Reducing Infection Risks
Did you know that coeliac disease can weaken the spleen? This can make individuals more vulnerable to life-threatening infections such as pneumonia and sepsis. New research aims to understand and reduce these risks.
Why Early Diagnosis Matters
Without proper diagnosis and a strict gluten-free diet, coeliac disease can lead to severe long-term health complications, including:
- Osteoporosis & Weak Bones – Due to poor calcium absorption
- Infertility & Pregnancy Complications – Linked to nutrient deficiencies
- Neurological Disorders – Such as nerve damage, migraines, and depression
- Increased Risk of Certain Cancers – Including small bowel cancer
Take Action Today
Take our self-assessment quiz
Could those unexplained symptoms be coeliac disease? Start your journey with our self-assessment quiz and take the first step towards discovery.
In just three minutes, you can assess your risk and discover the next steps, along with receiving helpful resources for your journey. This quiz is beneficial whether you’re experiencing specific symptoms like discomfort after eating gluten-containing foods, fatigue, or trouble focusing, or even if you have no symptoms but a family member has been diagnosed with coeliac disease.
Taking this quiz to explore your symptoms and risk factors is an important move towards safeguarding your health. Early identification and management of coeliac disease are vital to prevent long-term health issues.
Share This Information
Many people don’t realise they have coeliac disease. Help us spread awareness by sharing this page and using the hashtag #DidYouKnow #CoeliacAwarenessWeek on social media.
Support Research & Future Treatments
Coeliac Australia has committed over $600,000 to vital research—but we need your help. Donations fund life-changing studies that improve diagnosis, find new treatments, and move us closer to a cure.
Donate today
Help Us Raise Awareness This Coeliac Awareness Week
Every share, donation, and conversation helps bring coeliac disease out of the shadows.
Together, we can improve lives, support research, and move towards a cure.
Championing our campaign
We’re thrilled to have the support of our esteemed Ambassadors, who are joining forces to amplify our message:
- Brooke & Billy
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Brooke Buschkuehl
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Cherie Lyden
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Helen Tzouganatos
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Melanie Persson
Engage, Learn, and Take Action – Help spread the word!
This Coeliac Awareness Week offers opportunities for everyone, whether you’re a Coeliac Australia member, a friend or family member of someone with coeliac disease, or if you or someone you know has symptoms. There are plenty of ways to get involved, discover more, and make a difference.
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Inspiring Stories
Coeliac Awareness Week 2024 – Diagnosis Stories
Ben Hi - I am Ben, a 9-year-old who was diagnosed with coeliac when I was three years old....
Coeliac Awareness Week 2024 – Diagnosis Stories
David I’ve only been recently diagnosed with CD and my symptoms were unusual. I suffered...
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Lucia After my diagnosis, I was told I needed to have my children tested. Lucia tested...
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Mary A I was diagnosed aged 40, over 30 years ago. My main symptoms were...
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Kerryn For my kids who have coeliac disease, they weren't diagnosed until 14 years and 10...
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Barbara My symptoms were totally asymptomatic. I had a sensation of a lump in my throat which...
Coeliac Awareness Week 2024 – Diagnosis Stories
Ward My GP noticed a dramatic decline in my iron levels in my annual blood test about 18...
Coeliac Awareness Week 2024 – Diagnosis Stories
Sally I'd had type 1 diabetes since childhood, and a couple of years after I'd had my child my...
Coeliac Awareness Week 2024 – Diagnosis Stories
Rick My diagnosis of Celiac disease same through rashes that proved to be...
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Patricia 30+ years of microcytic anaemia while donating blood…. asked if I was a coeliac and I...
Coeliac Awareness Week 2024 – Diagnosis Stories
Hugh Teeth, I currently have 12 crowns. I was told that my teeth were compromised from Coeliac...
Coeliac Awareness Week 2024 – Diagnosis Stories
Amanda My 6yo son was diagnosed just before Christmas with Coeliac. Despite years of blood tests,...
Coeliac Awareness Week 2024 – Diagnosis Stories
Tiffany I wanted to let you know that I was diagnosed because I couldn't sleep. Over time I...
Coeliac Awareness Week 2024 – Diagnosis Stories
Deborah My brother was diagnosed in December 1995 with a blood test and endoscopy, looking...
Coeliac Awareness Week 2024 – Diagnosis Stories
Belinda I had no gut symptoms at all .....had a few "itchy " patches of skin that would not go...
Coeliac Awareness Week 2024 – Diagnosis Stories
Nicole I had my third child and while pregnant struggled with my iron. I was just told to get...
Coeliac Awareness Week 2024 – Diagnosis Stories
Debbie After my first child was born, I failed to put on much weight. Had no problems with...
Coeliac Awareness Week 2024 – Diagnosis Stories
Judy Prior to my diagnosis, which took about 7 years from the time I started to really...
Coeliac Awareness Week 2024 – Diagnosis Stories
James I am Jim and was diagnosed as a Coeliac in 2004 at age 61. Previously, our youngest...
Coeliac Awareness Week 2024 – Diagnosis Stories
Shirley As well as having pain in the gut as stated in the survey, I was also using my iron...
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